年轻女性癌症幸存者关心他们将来的生育和养育子女的选项,并希望更好的信息和指导早期, 根据由Jessica Gorman和她的团队在美国加州大学的一个新的研究. 他们的论文, 这对青少年的幸存者深入的信息’ 航行决定对生育和养育子女的经验, 在施普林格的是在网上公布中国癌症幸存者.
有更多的青少年和年轻成年人尚存他们的疾病, 造成大量和越来越多的育龄女性癌症幸存者. 年轻的癌症幸存者不太可能比非癌症幸存者有亲生子女, 主要是由于对未来生育率的癌症治疗方法的效果. 然而, 许多人不知道他们的待遇,对他们的生育能力的影响, 了解这些年轻女士’ 关注是对制定有效的第一步, 有针对性的干预措施,将满足那些想成为父母的需要.
研究人员探索的生育和养育子女的关注 22 美国女性癌症幸存者, 年龄介乎 18 和 34 年. 年轻女性, 招募诊所和社区为基础的服务项目, 参加焦点小组.
作者认为,从六个讨论主题:
1.一个充满希望的,但担心生育和养育子女的方法: 虽然与会者表示希望有一个家庭, 许多人也感到焦虑,他们将不能有自己的孩子.
2.缺乏选择或超过控制生育的挫折感: 即使年轻妇女承认,在诊断时讨论关于生育,已势不可挡, 他们强烈地感觉到,他们 (或他们的父母) 应该已经告诉我都对他们的生育能力治疗的影响, 治疗前可用的选项保留生育如. 冷冻卵子.
3.年轻的幸存者,希望他们的生育能力的信息: 数名妇女遗憾地报告,他们的医生没有跟他们商量有关生育,他们认为,一个年轻的女子进入青春期后,随时有这个讨论.
4.年轻的幸存者要更好地生存照顾的连续性: 许多人感到沮丧与多个医疗机构之间的协调性差的护理, 包括有关生育和计划怀孕的的护理. 他们认为,每个医生对他或她的专科问题, 而不是更大的图片.
5.癌症的诊断和相关的生育问题引入关系的挑战: 年轻女性关注这两者关系的早期阶段,在一个更??稳定的的关系.
6.关于父母的决定是复杂: 参加上市两种情绪 (担心他们的个人健康和寿命, 以及担心其潜在的孩子的健康) 和实际 (主要是金融) 父母障碍.
戈尔曼和团队结束; “它为研究人员和临床医生的关键是要理解年轻的女性幸存者’ 有关生育和养育子女的关注,以便充分地解决这些问题. 我们的研究结果表明,这些年轻妇女将受益于改进信息对他们的选择, 通过他们的医疗服务提供者发起的讨论, 更好地协调在生存照顾, 和指导,并在航行中出现的问题考虑生育和未来的父母时,双方感情和实际的支持。”(生物谷Bioon.com)
doi:10.1007/s11764-011-0211-9
PMC:
PMID:
How do you feel about fertility and parenthood? The voices of young female cancer survivors
Jessica R. Gorman, Samantha Bailey, John P. Pierce and H. Irene Su
Purpose
Young adult cancer survivors are often unaware of their fertility status and uninformed regarding their fertility and fertility preservation options. This qualitative research study explores the fertility and parenthood concerns of reproductive-age female cancer survivors and how they make parenthood decisions.
Methods
Population- and clinic-based recruitment methods were used to identify a diverse group of survivors between the ages of 18 and 34 years. Our final sample size included 22 participants who attended one of seven focus groups. We used cross-case, inductive analysis to identify themes.
Results
The following main themes were identified: (1) A hopeful but worried approach to fertility and parenthood, (2) Frustration with a lack of choice or control over fertility, (3) Young survivors want information about their fertility, (4) Young survivors want better continuity of care in survivorship, (5) Cancer diagnosis and related fertility problems introduce relationship challenges, and (6) Decisions about parenthood are complicated.
Conclusions
The diverse group of young cancer survivors in this study identified several common needs and concerns regarding fertility and parenthood. This study illustrates that young survivors could benefit from improved information regarding their fertility and parenthood options throughout survivorship, better coordination of medical care, and support navigating many emotional and practical issues that arise when considering their reproductive and parenthood options.